End of Life discussions

Structure Overview:

  • Introduction
  • Information Gathering
  • Delivering Information (Warning Shot)
  • Explore end of life views
  • Explain EOL Care
  • See the Patient Together




Introduction

  • “Thanks for meeting with me. Would you like anyone else to be here with you?”

Information Gathering

  • Clarify current understanding of the situation.
    “Before we start, can you tell me what you already know about what’s been happening?”
  • Ask about baseline health and function: “How was your [loved one] managing day to day before this illness?”
  • Explore end-of-life wishes:
    • “Has your [relative] ever spoken about what they would want if they became very unwell?”
    • “Do they have an Advance Care Directive or Power of Attorney?”

Delivering Information (“Warning Shot”)

  • Gently prepare: “I’m afraid I have some difficult news.”
  • “Your [relative] is very sick, and I’m worried they may be nearing the end of their life.”


Explore views on end of life

  • “At this stage, it’s looking less likely that further treatment will help.”
  • “What do you think your [relative] would have wanted if their younger self could sit here with us and tell us?”
  • “Knowing their quality of life as it is now, would they want to come back to hospital for more treatment, or would they prefer to die peacefully at home?”
  • “I’m worried we’re not prolonging their life, but actually prolonging their dying.”


Guide Through EOL Care

  • Discuss next steps:
    • Comfort-focused care / palliative approach
    • Referral to palliative care team
    • COSA chart (comfort observations) for monitoring
  • Address symptom control:
    • Pain – regular analgesia
    • Agitation – benzodiazepines, reassurance
    • Breathlessness – opioids, positioning, fan
    • Secretions – anticholinergics
    • Carer stress – ongoing support and respite


See the Patient Together

  • “Let’s go and see your [relative] together.”


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